About the Multinational Family Health History Project
G2MC is looking for partners and funders to support a global multi-site demonstration project to capture and use family health history data in support of genomic-based healthcare for every patient. Family health history is the most effective and low-cost tool to track genetically-caused diseases in families.
In a survey of the G2MC membership, 80% of respondents stated they want to participate in a family health history project, and the same percentage reported they want to improve the programs in their countries.
The project will span from low to high resource countries. Participants will come from a wide range of capabilities, from just getting started (no online tools or genetic counselors), to reaching the next level from what they have been doing for years.
Who We See as Critical Partners
- Private philanthropic funders, international humanitarian funders
- Genealogy industry partners | Learn More
- Software tech companies and Cloud service providers
- Genetic testing labs, and Direct-to-consumer companies
- Disease foundations (both rare and common)
- National genomic research initiatives
- Pharmacogenomic clinical trials
Key Goals of the Project
- Utilize common or standardized methods and processes to capture and store data
- Generate consistent data across multiple different healthcare and research sites
- Analyze family history data to support both genomic-based patient care and research
- Via a federated model, query de-identified data across sites to promote increased insight and knowledge of family health history utility
Global Cooperative for Family Health History Activities
- Share de-identified cases to improve clinical education, utility, and guide genetic/genomic testing and test result interpretation
- Capture and analyze what FHH collection tools are currently in use and what needs to be created and implemented
- Capture and support each participating group’s targeted patient population and main data focus (targeted diseases, genetic variants, drugs, etc.)
- Share and help each other to achieve goals in clinical delivery and outcomes
